Grin and bear it....

Sorry about the delay in posting info for what happened on Thursday- stayed at the hospital after working and then passed out when I got home.

Thursday Dad was a little more motivated to get up and out of bed. It has been frustrating for Mom to see him get so worked up and anxious about the possibility of pain and muscle spasms. So Thursday Dad decided to really work with physical therapy. He got up and walked and sat in a chair for a while before he got tired from not using his muscles. He also walked again in the afternoon. The problem is that the longer he goes without using his muscles the weaker his legs get. Dr. Virlar, his internal medicine doctor was here watching him walk from the bathroom and was able to see how anxious he gets about trying to get back into bed. He had a good talk with dad about moving quickly and just trying to grin and bear it or suck it up. He told him that we would never be able to get him totally free of pain, but we can manage it to be bearable---almost a dull ache. He is giving dad some new medications for anxiety and Dad was more motivated than ever to really work at moving quicker and trying not to let his mind and worry get the better of him.

The revilimid arrived yesterday. They were suppose to start his chemo yesterday, but by the time they gave him his IV fluids, it was almost 11pm. They decided to wait until Friday to start. This means he will be on a Monday/Friday chemo schedule this time.

The neurologist came to see dad again- since he was feeling a lot of pain in his spine and his groin. The good news is that there is no nerve damage. The only thing is that his leg muscles and hip flexors are weak---but we already knew that.

Thank you so much again for everything. I'm going to show dad how to post on this blog so that he can have the opportunity to address all of you.